1) There is nothing you can say to make it any worse or any better.
As you seek to sympathize and comfort us, we know it is difficult to know how to do that or what to say to us. Therefore, be relieved and know that your presence, phone calls, messages and support are what we need. Just the fact that you show us you love us DOES make it better.
2) We´re praying for a miracle.
We are praying (and ask you to join us) for healing. We are praying for the life of this baby. We know beyond a shadow of a doubt that our God is able to heal our child. And, in the same breath, we know that He is worthy, no matter the outcome.
If you do want to pray with us, here is what we would ask you to pray for:
I. For healing. II. For life and time with this child. III. Most importantly, that God would equip us for the days ahead and give us the strength to say, "not our will but Your will be done."
3) We are excited to have a baby girl!
We could not express how important it is for you to understand that we are not in despair. Rather, we are excited to have this baby at this time...and it´s a girl! Of course, we would do anything in order for her to be healthy, and we have cried enough to last a while; but we feel the Lord is sovereign and, therefore, has given this baby to us and specifically chosen us as her parents. So, we anxiously await our gift, for as long as the Lord would share her with us.
4) We are not strong.
If you happen to think that we are handling this well (and there are many moments I would argue that point) and see any strength in us at all, please know that it is from our Father and not due to anything having to do with either of us.
5) What can you do? Pray for all four of us.
(Much of this information was taken from Matt and Ginny Moody´s website about their son Eliot. They have already put into words the things that are in our hearts as Trisomy 18 parents.)
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